We just recently completed getting our home handicapped to where Trina’s wheelchair can now get anywhere inside and outside of our home. We also had her stroller, wheelchair and lapboard repaired so that they are stronger and safer. Since Trina “flails” a lot and she is strong, these all were broken and needed to be properly repaired. Life is so much easier with the right tools 🙂
Also, we will be able to start Physical Therapy again out of Oroville Hospital. They have us on a waiting list but the Order was called in and we are excited to learn more things that we can do to keep her legs from atrophying and her hands from curling (typical things that occur with brain damage). So far we have been blessed that the things we have done from day one to stop that progression have helped. But, as time passes we can tell that her extremities are losing muscle, sadly. Our goal is to continue to fight this. Unfortunately we have to drive 3 hours round trip to the only place that approved doing physical therapy for her (they usually want one to be able to obey a command before authorizing working with a patient). The Oroville group made an exception for Trina. YAY. This is our 2nd time being able to work with them!
Trina is now an Auntie, too. Her sister Carlyna just had a baby (Vada) 2 months ago and though we can’t get the baby too close to Trina (she could flail and hurt her) – we keep explaining to her that she is an Auntie!
Trina is still having issues with “screaming – yelling – while laughing” and it makes it difficult to have her in public and has stopped our travel plans. Our goal in 2015 is that this will get better and we can get on the road again and visit friends and family. Already in the last 2 weeks it has gotten a little better. The doctor was adding meds and that made it worse, then we took one med away and that seemed to help a little. One day at a time, but hoping for a little adventure this year as it is great stimulus for Trina and good for us to get out as well.
Thanks for all of the prayers and support. Today a woman asked for my help with her 14 year old, who is bulimic and I am hoping we can make a difference. Continue to share our website with anyone struggling with an eating disorder as we do hope to help anyone we can.
Blessings from Trina’s fam