Treasure each day for what it has in it.
For the last few months, I have found myself “feeling” the weight of Trina’s condition – mostly since we’ve had the blessing of seeing peace on her. These last months have involved a lot of disappointment surrounding doctor appointments as no one has a suggestion except to add more meds. So today I made a decision to embrace once again this new level with screaming as a norm and we must renew our attitudes and make the best of it. I cannot afford to let the difficulties tear me down emotionally as no one wins then. Trina deserves better and so do I.
The picture herein is of us recently taking her to the coast. We have new levels of having to help her not flail when outdoors (the stimulus is affecting her differently recently) but overall I am glad we keep trying no matter what. Quality of Life matters. I will never give up.
Being and staying HAPPY in this life often takes work. I was actually sinking a bit without realizing it over these last months and by the grace of God my spirit hit a place where I had to choose again to stand tall, dust all this icky stuff off, and regain the attitude that is win-win for all. Without God in my life I can easily see this type of situation smashing me. So, thanks God again for catching me.
Blessings are always visible in the storm but we have to choose to see them. My prayer is that as I age I can still remain the best caregiver and advocate I can be…not only to my disabled daughter but to the rest of my family.
This post is written by Trina’s mom and about my own feelings. Yet I must clarify that my posts are not just about me – this is a family endeavor. My husband is amazing and he loves Trina very much as do her sisters. Everyone is affected differently and could write a blog about their feelings, too, but for today – this is mom sharing her stuff.