July has been a hot one and thank God we have been able to take Trina into the pool almost daily. We are able to exercise her in the pool as well as cool us all off.
Usually mom’s sanity comes from outdoor walks with Trina or pulling her behind my bike in the Wike, but not in this heat…
Trina had some issues this month, so we’ve had to go to the doctor and attempt new sleep meds as she and I were up for over 50 hours (she doesn’t sleep without meds and they weren’t working). She also has dark circles under her eyes from no sleep. As a result we have second to second on-hands safety methods in play (when standing her), which is tiring for all. But, knowing what a blessing it is that she can stand and has movement to keep her from curling – I will not complain about a thing!! I just say thank you for her life and carry on.
My hubby, her “Staddio” continues to be amazing with Trina and she ADORES him. They have a super natural bond and I am so thankful for this. I pray every day that he and I both can live long so that we can continue to care for her.
We finally get to take Trina to the Coast for a few days and this will be exciting and awesome to get out of the heat. And, we are traveling with her sister, her husband and our new grand baby, so it is an extra special trip coming up for sure.
One day at a time. It’s great to be alive and to overcome any challenges caregiving yields as we have the opportunity of growing and learning daily.