BRIEF UPDATE: We’ve been home a lot the last couple of months for various reasons and we learned how important it is to keep / maintain a steady routine when caring for someone with brain damage. WE BELIEVE: Being consistent daily helps her brain try to remember. There’s no way to know but we keep…

HELLO EVERYONE: Well, not much to update you on. However, we are getting to the age where many people and family are either sick or dying. Those of us who are full-time caregivers, regular life still happens around us and for that we need balance within us. Our goal in caring for our girl is…

The year is moving along quickly! Sorry for the lack of updates. First, thank goodness she got healed from the infection we noted at the end of 2023. Frustrating issues with doctors and hospitals, etc at that time. But the infusions got rid of the infection, so hallelujah! We continue this year with various issues:…

Trina’s still having trouble and we do not have a lot of answers, but we discovered that Trina has had an infection (had been undetected), and antibiotics were given but weren’t working. SO we ended up going to the hospital daily for 2 weeks for her to have IV infusions. Today was Day 14. Hallelujah!!…

I’ve already mentioned how it’s been a rough year. We thought Trina was having an increase in seizures – then a new potential diagnosis was added. In 2022 she had several Grand Mal’s and a lot of Cluster seizures after that, which continued into 2023. Her previous neurologist wasn’t able to stop them. She kept…