Thank you for the prayers for Steve.  He had the tumor removed from his eye and we are still waiting for a PET Scan next week at UCSF to confirm that cancer is not anywhere else in his body.  So, we are believing that it was localized and GONE. Amen! Update for Trina.  Yesterday, she…

Trina is stable.  However, as most of you know, my husband Steve is a huge blessing to Trina.  He loves her and is her primary caregiver with me, mom.  He truly is her daddy on earth (biological daddy is in heaven). We just found out yesterday that Steve has Ocular Lymphoma (cancer of the eye). …

Many of you may not understand what I am about to share.  In “Trina’s Story” I did not give all of the “details” as I did not feel it was appropriate.  Yet everyone knows she is still married and we did not know where her husband was…until a couple of weeks ago.  He and I…

We’ve been taking care of Trina at home now for nearly 4 months.  With severe brain damage – it is great to believe in a miracle, such as a complete healing … but the day-to-day realities allow us to be excited about the small things of change.  Up until a couple of days ago, Trina…

We recently took Trina to an eye doctor to verify the condition of her vision … and surprisingly he had information for us. He said her brain really is like that of a baby.  And, that we should “cuddle” her and “rock” her and talk with her at that level as we work to advance…

Trina continues to amaze us with getting better at walking.  But, we really solicit your prayers with the unpredictability of the brain and the ups and downs and plateaus that we do not understand.  When she was in the hospital she did eat some and yet did not sleep.  Now she sleeps but does not…

HOME has made a huge difference for Katrina.  She is so peaceful and joyful.  Now, in recent weeks – she began taking a literal jog through the hallway and comes up to us and grabs a hold of us.  A lot of deep stares, too, which really makes you wonder what she is thinking.  It…

It’s been about 3 weeks now since we brought Trina home. So glad to have her home and yet the transition did test us.  Many things changed for Trina that had been customary for us all in a hospital for a year … and so it seemed as though her little system just couldn’t handle…

It has been a TRYING couple of months planning to bring Trina home. 1)  Trina looks great and yet continues to pull back from progress.  She barely wants to eat by mouth, so we have had to increase her tube feeding to almost 100% of her calories as she was losing weight and is already…

It has been an unbelievable learning curve planning to bring Trina home.  I really hate to make this observation, but it seems like the employees of the various government programs needed to make it happen are disconnected, especially when you add to the mix moving from one county to another.  I have been running in…