November 2011 Updates

Greetings everyone.  Updates:

1)  Steve is now cancer free – thanks for the prayers.  His type of eye cancer is highly recurring, so now we just pray that the every 90 day scan he is scheduled for will also be cancer free.

2)  We took Trina to UC Davis.  The doctor there is not optimistic about her improving and in fact denied that her “more movement” and “making noises / sounds” had anything to do with an improved brain… and he just reiterated how an Anoxic brain injury is the most severe “whole” brain damage that does not get recovered from.  This could have been depressing but we still CHOOSE to have hope.  He did give us a new medication for sleeping that is also an anti-depressant and though it is not working that great for sleep – she is laughing all day long.  The best hope we have is that she is so peaceful, so loving and now laughing that we ARE able to ENJOY her and feed her LOVE … so this is all good news that we will stand by.  We can’t wait for the day that SHE IS IMPROVED where the doctors cannot ignore the improvement and have to call it a MIRACLE 🙂  So, keep up the prayers with us.

3)  What is new is that MOM is learning that she cannot work very much at all.  Trying to work at home was successful for a couple of months, but now that Trina is SO active and SO LOUD with her sounds, etc. – that it prohibits mom from talking to clients without having to explain the situation – or Trina’s actions hinder even holding the phone or being on the computer.  The more active she is the happier we are for her but the more we have to watch her every moment to keep her safe and the more working is just not possible.  This will greatly diminish income.  However, NO we are not asking for anyone to help with that.  We are simply going to pull back and tighten up and make it work for us.  Of course prayers for the whole family will always be needed…this is just a big change unfolding.

4)  Recently there have been family members and others who have thought it was best for us to put Trina in a skilled nursing home.  We absolutely KNOW that we will never do this unless we CANNOT care for her physically because remember we practically lived at the skilled nursing facility she was at for one year.  These people are warehoused.  Even with good help there – it is not the love of one’s family…. and it is clearly more dangerous as to infection, etc.  Safety is at OUR HOME, LOVE IS AT OUR HOME.  And, we do not desire to make ourselves “comfortable” by sacrificing her well being.  LOVE is not easy and LOVE is tested and we have the LOVE to endure.  Of course life is different now and we cannot be selfish as we used to be able to be but that is OK.  We do not ask for anyone to feel sorry for us.  But, we do hope that these type of suggestions diminish over time.

5)  As for Trina’s husband – we have put no pressures on him and he may or may not be able to handle seeing her on a regular basis – we have left this up to him.  Though she carries his name – they are not operating as “in a marriage.”  We remain her conservators and will remain in charge of all decisions for her.  Some people have voiced that our ability to forgive and embrace him touched them and some have voiced anger about that choice.  Truthful updates will continue as opinions are always there and always vary.  We know opinions are given out of love and so no offense taken!

Sharing pic below of recent laughter episode…. just because.

God Bless all of you and thanks for checking in.

5 responses to “November 2011 Updates”

  1. Jacqueline Jolley Avatar
    Jacqueline Jolley

    God bless you all for your perseverance and endurance during all of this. Trina looks so beautiful with that smile on her face. And Mom – you rock!

    We continue to pray for ALL of you!

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  2. Hi, Sandi, Steve, & Trina-
    You are so right, it is really easier on all of your hearts, minds, and souls to care for Trina at home. We learned this from experience with my Dad- for a time he HAD to be in a facility until we got our equipment and caregiving in order, but we found that we spent just as much time going back and forth to be with him and still had to be there most of the time to make sure that his needs were met, and this was in an excellent facility!
    Once we got Dad back home and got ourselves on a schedule (he needed 24 hour care and sometimes 2 caregivers at a time!) we found that he and we were so much more comfortable and happy. We were lucky to have the assistance of the Veteran’s Administration, and we found some wonderful caregivers who will remain our friends for life. The costs worked out to be about the same as in-facility care and the family was much less stressed out. And Dad was so happy that he could look out the windows of the home that he built and watch the deer, quail, and other wildlife enjoy the fruits that he had planted so long ago.
    I can see from Trina’s pictures that she is much better off at home with you.
    Love to you all,
    Cathy Marino

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    1. Absolutely Cathy. And, I know that you and Cory took 99% of the responsibility on for loving on your parents … often times the other family members are just not equipped to handle it. You and Cory have been caregivers for many many years, so I know that you understand. The only sad thing to me is that we thought that Trina would have the kids she grew up with come see her. ONLY ONE FRIEND came the first 2 weeks and NO MORE visitors! Even Grandpa Roberts, Aunt Lynndee and that side of the fam wants to “remember her the way she was” and NOT SEE her now. I have had to take my broken heart to God for healing as I just don’t get it. Then, other family (other grandparents, and my sister) think she should be in a home. They don’t have a glue the WHY home is better, even if it is a sacrifice! So, thanks for the encouragement and thanks again for your help before… you were a godsend. We wanted you to come for Thanksgiving but when I asked Cory about it a few weeks ago, she said you already had plans. Maybe some other time you can come for a visit. God Bless Cathy and love and blessings to you, too. Sandy and Steve

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  3. People will never understand until they are in that position themselves. Would they want to be put in a home? I doubt it. Family is all we have when it comes down to it, life is too short to hold anything else in higher regard than our loved ones.

    As for Katrina’s “husband”…. We reap what we sow. If only sociopaths felt guilt or accountability. I only hope that this weighs on him. In exchange for serving time I hope he thinks about our family and the pain that he has caused others and actually feels some kind of remorse, however I know that’s wishful thinking. (No need to comment on my lack of compassion or inability to forgive in this situation).

    I love my sisters and my family very much and am grateful that we have eachother. I am thankful that we have come to a peaceful state and know that we will be able to take things as they come. I am especially thankful for Sandy and Steve and their dedication & commitment to my baby sister.

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