As many of you know – we had to give up traveling long ago because of seizures and because of having no way to change Trina’s diaper when on the road (no where to change an adult diaper)… So, we have been content to stay at home and usually people have to come to us to visit.

However, I have another daughter who moved out of town, about 3 1/2 hours away, many years ago and it’s been impossible to get to her and her family is busy so equally difficult for them to get here to see us.

SO we are taking a leap of faith and rented a condo and a hospital bed near them for a 4 day trip to visit, see their new home, and get to have a real visit. PRAYERS are appreciated as it will be raining, and hoping no one gets sick since it’s winter, and that it is a trip that goes well in all ways.

And, though Trina is still having seizures almost every day – they used to be clusters every day and now they are often one and done not requiring medicine. The clusters are down to about 3 times a month, so we pray for continued blessings there. Other issues have come into play, like more flailing and some what we call mania and we have Trina’s neurologist involved in helping with those changes. As I always say – STILL, she is so amazing, so funny with such a cute and full personality (that we see but others that see her might hope she’d be quiet)…we thank God for her personality and any sounds or noise she makes tells us she is fully with us. Our job is just to pour in our love and God’s love!

We just hired a helper to help 4 hours a week (after interviewing 12 people- only one was good and we are thankful for her). So, next week we might enjoy an errand and maybe a meal out. We never need to be away from Trina, but we know it’s good at our age to enjoy one another with a couple outings. Yay.

This picture is me taking Trina and her nephew ( 16 months old) on a walk. So precious. It’s the small things that bring joy daily…

Everyone have a blessed week to those who check in occasionally and God Bless you.

Sandy (mom)